Epilepsy Is More Than Seizures with Monica Lopez Morales and Dr. Nancy Musarra

In this episode of the KCNA2 & Rare Epilepsy Podcast, we welcome back epilepsy advocate Monica Lopez Morales for an honest and empowering conversation about what it really means to live with epilepsy. Monica shares her lived experience, the stigma and isolation many people face, and why epilepsy education matters so much for families, caregivers, clinicians, and the wider community.

Together, we talk about common myths around seizures, the different types of seizures people may not recognize, what seizure first aid actually looks like, and why awareness can save lives. Monica also opens up about SUDEP, the anxiety that can come with epilepsy, and the importance of community support for people who feel alone or misunderstood.

This episode is a reminder that epilepsy is about so much more than seizures. It is about safety, connection, mental health, dignity, and making sure no one has to navigate this journey alone.

And remember...
This episode shares personal experience and general education about epilepsy. It is not a substitute for medical advice. Please speak with your doctor or epilepsy care team about diagnosis, treatment, seizure first aid, and emergency planning.

About KCNA2

KCNA2-related epilepsy is a rare neurological condition that affects how the brain sends electrical signals, often leading to seizures, movement challenges, and developmental differences. Every experience is unique, but community and shared stories play a critical role in support and understanding. You can read more on our website https://www.kcna2epilepsy.org/